Welcome to the Childrens Hyperinsulinism Charity website. We very much hope you find it interesting and helpful. It has been written by parents for parents who have children with congenital hyperinsulinism and also for others to gain a basic insight of the condition.
The CHC Team
Please take a moment to read our full COVID-19 information
With Coronavirus (COVID-19) continuing to spread worldwide and in the UK, we want to keep you guided to the most relevant information.
Whilst we cannot offer any medical advice, and there is no additional specific advice for Hyperinsulinism, we are advising you to make decisions based on government guidance plus your own individual situation.
In the event of your child becoming poorly, we urge you to follow their individual illness and hypo plans, and to contact your relevant healthcare professional if you need further assistance and guidance. We have created a list of questions to help you assess your situation and guide your actions in this difficult time.
All NHS Trusts will continue to release statements following the latest government advice, but please note these guidelines will change. We recommend you check the websites on our dedicated COVID-19 page frequently as information continues to be updated.
The Children’s Hyperinsulinism Charity is committed to ensuring that your privacy is protected. Should we ask you to provide certain information by which you can be identified when using this website, then you can be assured that it will only be used in accordance with this privacy statement. By using our website, you’re agreeing to be bound by this Policy.
The Children’s Hyperinsulinism Charity may change this policy from time to time by updating this page. You should check this page from time to time to ensure that you are happy with any changes.
Who we are:
We are The Children’s Hyperinsulinism Charity, the UK’s only registered charity (no.1165562) dedicated to supporting families within the UK and Ireland whose children live with Congenital Hyperinsulinism.
Our registered address is 7 Quarry Close, Corby, Northants, NN17 1FL.
How do we collect information from you?
We obtain information about you when you use our website, for example, when you contact us, to make a donation, booking for our events such as conferences.
The personal information we collect might include your name, address, email address, IP address, and information regarding what pages are accessed and when. If you make a donation online or purchase a product from us, your card information is not held by us, it is collected by our third party payment processors, who specialise in the secure online capture and processing of credit/debit card transactions.
What we do with the information we gather
We may use the information you provide for the following reasons:
We review our retention periods for personal information on a regular basis. We are legally required to hold some types of information to fulfil our statutory obligations, such as the collection of Gift Aid. We will hold your personal information on our systems for as long as necessary for the relevant activity.
Controlling your personal information
We will not sell, distribute or lease your personal information to third parties unless we have your written permission or are required by law to do so.
When you are using our secure online donation pages, your donation is processed by a third party payment processor, who specialises in the secure online capture and processing of credit/debit card transactions. If you have any questions or concerns regarding secure transactions, please contact us.
You have a choice about whether or not you wish to receive information from us. You can choose to:
You can make your selection by ticking the relevant boxes situated on the form on which we collect your information.
We will not contact you for marketing purposes by email, phone or text message unless you have given your prior consent. We will not contact you for marketing purposes by post if you have indicated that you do not wish to be contacted.
Access to your information
If you believe that any information we are holding on you is incorrect or incomplete, please email us as soon as possible, at the above address. We will promptly correct any information found to be incorrect.
When you give us personal information we are committed to ensuring that your information is secure. Any sensitive information (such as credit/debit card details) is encrypted and protected. In order to prevent unauthorised access or disclosure, we have put in place a SSL (Secure Sockets Layer) to safeguard and secure the information we collect online.
Non-sensitive details (your email address etc.) are transmitted normally over the Internet, and this can never be guaranteed to be 100% secure. As a result, while we strive to protect your personal information, we cannot guarantee the security of any information you transmit to us, and you do so at your own risk. Once we receive your information, we make our best effort to ensure its security on our systems.
A cookie is a small file which asks permission to be placed on your computer's hard drive.
Cookies help us provide you with a better website, by enabling us to monitor which pages you find useful and which you do not. A cookie in no way gives us access to your computer or any information about you, other than the data you choose to share with us such as contacting us via our website or completing booking forms for conferences.
You can choose to accept or decline cookies. Most web browsers automatically accept cookies, but you can usually modify your browser setting to decline cookies if you prefer. This may prevent you from taking full advantage of the website.
Links to other websites
Our website may contain links to other websites of interest. However, once you have used these links to leave our site, you should note that we do not have any control over that other website. We cannot be responsible for the protection and privacy of any information which you provide whilst visiting such sites and such sites are not governed by this privacy statement. You should exercise caution and look at the privacy statement applicable to the website in question. These sites may include Twitter, PayPal, Just Giving and Virgin Money Giving as well as Facebook and their linked sites such as Instagram.
As part of the services offered to you through this website, the information which you provide to us may be transferred to countries outside the European Union (“EU”). By way of example, this may happen if any of our servers are from time to time located in a country outside of the EU such as Facebook/Twitter etc. These countries may not have similar data protection laws to the UK. By submitting your personal data, you’re agreeing to this transfer, storing or processing. If we transfer your information outside of the EU in this way, we will take steps to ensure that appropriate security measures are taken with the aim of ensuring that your privacy rights continue to be protected as outlined in this Policy.
If you use our services while you are outside the EU, your information may be transferred outside the EU in order to provide you with those services.
We keep this Policy under regular review. This Policy was last updated in Feb 2018.
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The Children's Hyperinsulinism Charity
Registered Charity Number: 1165562
The CHC is set up by parents for parents
For any medical advice, you should always contact your specialist medical team.
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