In 2016, families of children with Congenital Hyperinsulinism and The Children’s Hyperinsulinism Charity participated in a Focus Group with Findacure to give their perspectives on living with a rare disease and the impact it has.

The report can be accessed here:

Findacure. Rare Disease Perspectives: CHI Focus Group Report 2016. http://www.findacure.org.uk/wp-content/uploads/2016/10/Congenital-Hyperinsulinism-Findacure-rare-Disease-Perspectives-2016.pdf 


 

A further study was published in 2018 citing the report for a deeper understanding of the cost implications of Congenital Hyperinsulinism within the UK.  This report can be found here:

https://ojrd.biomedcentral.com/articles/10.1186/s13023-018-0867-6

The Childrens Hyperinsulinism Charity

The Childrens Hyperinsulinism Charity
Registered Charity Number: 1165562

Contact us

© 2020 Childrens Hyperinsulinism Charity. All rights reserved. CMS Design