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These are all links that have been recommended by families who have a child with CHI and whom have benefited and/or comforted the families in some way.   If you feel that your charity or organisation could be a part of our links page please contact us via our contact page.   

Thank you



National Clinics of Excellence

GOSHCHI based at Great Ormond Street Hospital : Click Here

NORCHI based at Manchester Children’s Hospital and Liverpool’s Alder Hey : Click Here


Europeon and Worldwide Support Groups

Congenital International

Sur 1







Diabetes related although most relevant to CHI

Children with Diabetes

Families with Diabetes National Network

UCLH (University College London Hospital)

INPUT : charity providing assistance with insulin pumps, CGM etc

Diabetes UK


National Paediatric Diabetes Network

The Global Diabetes Community

SCD : Supporting children with Diabetes – financial assistance for those who qualify




Rare diseases in UK

Rare diseases in Europe

CLIMB : National Information Centre for Metabolic Diseases



Living with a child with extra needs

The Sick Children’s Trust

Disabled Living

Kids : working with disabled children, young people and their families

Contact a Family with a disabled child




Turn 2 Us : a national charity that helps people in financial hardship to gain access to welfare benefits, charitable grants and support services.

Family Fund

Benefits Calculator



Anything else

Carbs and Cals (carbohydrate counting)

Riding for the Disabled Association

Buzzy UK : taking the sting out of shots



Schools Help

Independent Parental Special Education Advice (known as IPSEA)

Diabetes UK – Careline for problems with schools

Statutory Guidance for Supporting Children at school with a medical condition



Courage Hope Inspiration

The Children's Hyperinsulinism Charity
Registered Charity Number: 1165562

The CHC is set up by parents for parents

For any medical advice, you should always contact your specialist medical team.

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