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These are all links that have been recommended by families who have a child with CHI and whom have benefited and/or comforted the families in some way.   If you feel that your charity or organisation could be a part of our links page please contact us via our contact page.   

Thank you

 


 

National Clinics of Excellence

GOSHCHI based at Great Ormond Street Hospital : Click Here

NORCHI based at Manchester Children’s Hospital and Liverpool’s Alder Hey : Click Here


 

Europeon and Worldwide Support Groups

Congenital International www.congenitalhi.org

Sur 1 www.sur1.org

Germany www.hyperinsulinismus.de  

Argentina www.hicongenito.com.ar

Australian www.facebook.com/groups/260737860718587

France www.hyperinsulinisme.com

 


 

Diabetes related although most relevant to CHI

Children with Diabetes www.childrenwithdiabetesuk.org

Families with Diabetes National Network www.familieswithdiabetesuk.co.uk

UCLH (University College London Hospital) www.uclh.nhs.uk/OurServices/ServiceA-Z/CYPS/PDIAB/Pages/Home.aspx

INPUT : charity providing assistance with insulin pumps, CGM etc www.inputdiabetes.org.uk

Diabetes UK www.diabetes.org.uk

JDRF  www.jdrf.org.uk

National Paediatric Diabetes Network www.cypdiabetesnetwork.nhs.uk

The Global Diabetes Community www.diabetes.co.uk

SCD : Supporting children with Diabetes – financial assistance for those who qualify www.scd.uk.com

 


 

Miscellaneous


Rare diseases in UK www.raredisease.org.uk

Rare diseases in Europe www.eurordis.org

CLIMB : National Information Centre for Metabolic Diseases www.climb.org.uk

 


 

Living with a child with extra needs

The Sick Children’s Trust www.sickchildrenstrust.org

Disabled Living www.disabledliving.co.uk

Kids : working with disabled children, young people and their families www.kids.org.uk

Contact a Family with a disabled child www.cafamily.org.uk

 


 

Finances/Benefit/Assistance

Turn 2 Us : a national charity that helps people in financial hardship to gain access to welfare benefits, charitable grants and support services. www.turn2us.org.uk

Family Fund www.familyfund.org.uk

Benefits Calculator www.entitledto.co.uk

 


 

Anything else

Carbs and Cals (carbohydrate counting) www.carbsandcals.com

Riding for the Disabled Association www.rda.org.uk

Buzzy UK : taking the sting out of shots www.buzzy4shots.co.uk

 


 

Schools Help

Independent Parental Special Education Advice (known as IPSEA) www.ipsea.org.uk

Diabetes UK – Careline for problems with schools www.diabetes.org.uk/care-in-school

Statutory Guidance for Supporting Children at school with a medical condition www.gov.uk/government/publications/supporting-pupils-at-school-with-medical-conditions--3

 


 

Courage Hope Inspiration

The Children's Hyperinsulinism Charity
Registered Charity Number: 1165562

The CHC is set up by parents for parents

For any medical advice, you should always contact your specialist medical team.

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