These are all links that have been recommended by families who have a child with CHI and whom have benefited and/or comforted the families in some way. If you feel that your charity or organisation could be a part of our links page please contact us via our contact page.
Thank you
European and Worldwide Support Groups
Congenital International www.congenitalhi.org
Sur 1 www.sur1.org
Germany www.hyperinsulinismus.de
Argentina www.hicongenito.com.ar
Australian www.facebook.com/groups/260737860718587
France www.hyperinsulinisme.com
Diabetes related although most relevant to CHI
Children with Diabetes www.childrenwithdiabetesuk.org
UCLH (University College London Hospital) www.uclh.nhs.uk/OurServices/ServiceA-Z/CYPS/PDIAB/Pages/Home.aspx
INPUT : charity providing assistance with insulin pumps, CGM etc www.inputdiabetes.org.uk
Diabetes UK www.diabetes.org.uk
JDRF www.jdrf.org.uk
National Paediatric Diabetes Network www.cypdiabetesnetwork.nhs.uk
The Global Diabetes Community www.diabetes.co.uk
SCD : Supporting children with Diabetes – financial assistance for those who qualify www.scd.uk.com
Miscellaneous
Rare diseases in UK www.raredisease.org.uk
Rare diseases in Europe www.eurordis.org
CLIMB : National Information Centre for Metabolic Diseases www.climb.org.uk
Living with a child with extra needs
The Sick Children’s Trust www.sickchildrenstrust.org
Disabled Living www.disabledliving.co.uk
Kids : working with disabled children, young people and their families www.kids.org.uk
Contact a Family with a disabled child www.cafamily.org.uk
Finances/Benefit/Assistance
Turn 2 Us : a national charity that helps people in financial hardship to gain access to welfare benefits, charitable grants and support services. www.turn2us.org.uk
Family Fund www.familyfund.org.uk
Benefits Calculator www.entitledto.co.uk
Anything else
Carbs and Cals (carbohydrate counting) www.carbsandcals.com
Riding for the Disabled Association www.rda.org.uk
Buzzy UK : taking the sting out of shots www.buzzy4shots.co.uk
Schools Help
Independent Parental Special Education Advice (known as IPSEA) www.ipsea.org.uk
Diabetes UK – Careline for problems with schools www.diabetes.org.uk/care-in-school
Statutory Guidance for Supporting Children at school with a medical condition www.gov.uk/government/publications/supporting-pupils-at-school-with-medical-conditions--3
