Family Support
Built with HI Families
Family Support
Support for the emotional, practical and everyday life with Hyperinsulinism.
Trusted support for you, your family and the everyday challenges of life with Hyperinsulinism, along with organisations that help create smiles and special memories.
Support for You & Your Family
The Children’s Hyperinsulinism Charity runs a private Facebook support group where families can connect with others who truly understand life with HI. With over 1,200 members and growing, it offers a safe, supportive space to ask questions, share experiences, and find reassurance at every stage of the HI journey.
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Brave creates self-care opportunities for parent carers to enjoy much-needed ‘you’ time, supporting their mental health and overall wellbeing. Brave parents is a registered charity providing self-care opportunities for parents of children with complex medical needs. They offer a variety of ways to support parent carers, form in-person and virtual events to Brave Boxes delivered straight to your door. Brave also works closely with hospitals, hospices and other charities to remind parent carers that looking after themselves isn’t a luxury; it’s essential, especially during the toughest times.
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Home-Start UK is a national charity there for parents when they need help the most. There are around 175 independent Home-Starts working in areas across the UK offering support for struggling families. Families experiencing post-natal depression, isolation, physical health problems, bereavement and many other issues receive the support of a volunteer who will spend around 2 hours a week in our home supporting you in ways you need.
Cards for Bravery is a UK charity dedicated to brightening the days and improving the emotional wellbeing of hospitalised and seriously ill children aged 0-25 and their families. We support children and young people through a range of services including the distribution of handmade bravery cards, care packages, wellbeing initiatives and other projects designed to reduce isolation, provide comfort and help families feel seen and supported during difficult times.
Support for Everyday Life
Family Fund provides free grants and services to families raising children and young people with additional needs, to help ease daily pressures and make life a little more manageable. The offer includes:
Parent/carer workshops covering a range of topics to boost financial and digital skills and confidence.
Creative workshops for children and young people with additional needs and their siblings to enjoy from the comfort of their own home.
Discover more support tool encompassing over 180 organisations who can offer support to families.
Online interactive guides and tools offering simple & reliable information families can access in their own time.
Grants for a wide variety of practical items and services designed to make day-to-day life easier.
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The Hidden Disabilities Sunflower lets people with non-visible disabilities discreetly signal they may need additional support, time, space or understanding.
Simple, supportive actions can make a big difference, such as taking a calm approach, offering clear directions, allowing extra time at busy points, or helping someone find a quieter space if they feel overwhelmed.
Choice matters including how to wear it and when to wear it. The sunflower is available in a range of options, including a lanyard, badge, bracelet and digital options. In certain situations, or at certain times, Sunflower wearers benefit when those around them know they have a non-visible disability, so they can receive offers of support and kindness.
Making the invisible visible.
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MedicAlert is the UK’s first and only medical ID charity, providing key life-savings information to first responders in an emergency.
MedicAlert supports people of all ages and their families by providing peace of mind, knowing that when a loved one is alone and cannot advocate for themselves, their ID will communicate for them.
Each ID is engraved with the MedicAlert logo that is recognised by emergency services around the world, as well as the key conditions, and MedicAlerts 24/7 emergency line with access to the member’s full medical record and emergency contacts. Wherever you go, MedicAlert is your voice.
Please see our website for more details on HI family membership od MedicAlert
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Support for Smiles & Memories
Parts of the Barrie Wells Trust, Box4Kids secures donations of executive boxes and hospitality seating at sporting and entertainment venues across the UK.
An executive box experience gives seriously ill and disabled children 6-18 and their families a safe, relaxed VIP environment where they can enjoy a much-needed escape together.
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The Children’s Hyperinsulinism Charity Family Fun Days and Family Conferences bring HI families together for connection, friendship, and unforgettable memories. These events give children with CHI the chance to meet others like them, siblings to connect with peers who understand their unique role, and parents to find support in a community that truly “gets it”.
Whether it’s a theme park day or our conference family day, these moments help families feel part of a wider HI community. Find out more
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bee rating = HIVE member
= HI Family Recommended
Help Grow the HIVE
Know an organisation that helped your family?
“Every organisation in the HIVE has been checked by our team or recommended by HI families.”
